
So things seem to happen fast when the time is right!
We went down to Cornwall last weekend and fell in love with a cottage on a river. Not quite where we thought, terrible disabled access and on a main road BUT 90ft garden to tidal river (visions of rowing down to the local pub at weekends, picnics and barbecues) triple glazed so no road noise, big kitchen, rayburn,wood burner, three beds, studio and garage, we were smitten! The first place we saw but it felt right, and felt like us. We have sent all the bunf off and now await news from the agents. Fingers crossed. We are sort of holding our breath while also tentatively contacting Rosa's potential team down there, so far I have left several messages and wait to hear back from school and social workers. Although we are really sad to leave Rosa's wonderful team I am trying to be optimistic about finding a whole new bunch of wonderful people to support her and therefore us too. Life is hard work at the moment, not enough sleep and too much to do but it also feels exciting, like we are at the start of something. We had quite an amazing weekend, a real roller-coaster but we felt so supported at every turn by our precious friends, thank you so much team! It always amazes me how we can be turned around so quickly, this time last week we were still getting used to the idea of moving and I was getting very angry with estate agents looking in my cupboards and sad about leaving what I have come to think of as my garden. Now I care a lot less,it feels more like the natural end of a chapter and we can't wait for the next bit.
Rosa is on a fairly even keel but we are still battling sharp ouchy farts and chair rage, one maybe caused by the other! She is doing quite well in her wheelchair some days and refuses other days which we have to see as progress even if it is very slow. We seem to have got her constipation managed at last, a combination of syrup of figs to get her started and then movicol mixed into smoothie once or twice a day. It is such a relief as she was really suffering and it's a hard thing to help her with. She is still having at least one or two painful windy bouts a day, the buscopan sometimes helps but not always, we have tried mebeverine which is an alternative anti spasmodical medicine but we don't feel we have given it enough of a go to know if it is working. Now it is time to get some sleep another day of lists and baby chasing tomorrow.
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