Much time has gone by again so a whistle stop tour of the last month or so;
Everybody is reasonably although not completely healthy, just coughs and colds it's been such a grim winter for bugs.
We had a lovely if slightly exhausting holiday down at Pendeen near St.Just in deepest darkest Cornwall. We celebrated our 20th (!!!) anniversary with a week of good food, nice walks and quality time with our babies. A beautiful place and some really wonderful moments. The babes sleep was iffy, mainly because Ithan got his first tooth at the start of the week and his second at the end so he was a bit bothered. Rosa slept well through the nights but was reluctant to nap, as parents it is so dangerous to rely on sleep!
Rosa has been on really good form for a good while although chair rage still lurks not far below the surface.We have been reluctantly giving her diazepam from time to time to help reduce her muscle spasms and generally relax her a little. It is not uncommon for her to get so tense she makes herself vomit, particularly where chairs and straps are concerned and we really want to help her get beyond this reaction. It is mostly not even that she is particularly unhappy or stressed just that every muscle is so very tight.
OK this post has been gathering dust on my desktop for ages, I think I have to post bits and pieces as and when otherwise I'll be writing an epic on my death bed!
So Spring has finally come round again. Rosa is on the up again, we really hope and Ithan is a star and an imp, more of each as every day passes.
Rosa has been battling constipation the last little while. it has been no fun for any of us as it makes her writhe and perpetually uncomfortable and hence pretty much unputdownable. Exhausting to hold her and wrestle against her and impossible not to as she is instantly distressed when not held by one of us. It is draining and relentless especially as Ithan also gets more mobile by the day and there are not enough arms. I remind us every day that this is the most intense bit and we do also laugh every day.....sometimes though, thank god for booze!
We have tried giving her movicol (recommended by a Dr. at the hospice) which is the current paediatric medicine for gentle relief of constipation...pretty hard to get enough of it into her and if she isn't trying it makes no difference how soft it is. We did resort to off the shelf Senna and fig in the end, not ideal as it works by irritating in her case an already sensitive gut but it had been 9 days and she was so unhappy, it worked and she gets better by each poo!
But enough about faeces! It seems my life at the moment is about feeding, cleaning up after feeding and nappies, sometimes it seems a challenge to fit other stuff in but I think this is probably normal for parents with babes as close together as ours!
We are fitting other stuff in, some good stuff and also appointments and mundane but necessary stuff too. Rosa is getting a car for her birthday! Her high rate mobility allowance kicks in when she is three and we have decided to swap the extra weekly money for worry and cost free motoring which is available to us through the motorbility scheme. It will be an orangey red Peugeot Partner with a wheelchair ramp, brand new and shiny, wow! In theory we should get it on or around her birthday and we'll have it for five years, all we have to pay is fuel. Pretty surreal to imagine us in a new car!
OK short and not terribly sweet but bedtime now, not enough sleep lately.......more soon, so much to tell always xx